Long post over :) I'm looking at ordering one but it won't arrive until April so if anyone's interested, I'll promise to do a follow up with my experience. Or, if it does actually do what it says it does, than maybe it can help more of you out there. But I still wanted to see if any of you have bought one. I'm working on getting my health plan to cover it (I'm lucky to live in Canada and I have excellent benefits with work). I should note that I live quite far from my extended family so I'm very lucky to have the friends that I do. I don't see it that way, but when it's your life would you really want to call it a disability?Īnyways, this watch may be the answer if I want to continue to live alone and have everything I've worked so hard for and I'm worried that it's too good to be true. But I mean it to say that the majority of people in my life would have no idea that I live with a disability. That's not to say I'm ashamed, absolutely not, my seizures define me in a way. One that's normally led with seizures being a little secret that no one would have guessed it they knew me. I'm lucky as after years of hard work, I have a good job and a good life. Especially if you have nocturnal seizures. Given that one out of 24 of us are statistically predicted to go this way. The idea of SUDEP scares the shit out of me, to be honest. I've been thinking of getting a trained dog, but really what can they help if I'm suffocating from a severe grand Mal seizure and I'm alone. But they keep getting stronger and the meds just get weaker. Anywhere from multiple partials throughout the day, to multiple grand mals, to nothing for years at a time. Until my seizures really started at 16.intermittent since then and mostly regulated by meds. They kept my on meds for two years and then nothing. Came out fine, better than according to some tests, but fraught with anxiety and other issues. I had a febrile seizure at 2 which continued for almost two days and they didn't know if I'd be brain damaged. I am a single 32 year old female and I live alone, well with my cat Arya for company :) My point is, that as I get older and my seizures get worse, I'm worried about living alone and there being no one here in case there's ever something seriously wrong. My backstory: Most of my seizures happen either while I'm asleep or when I first wake up in the morning. I don't want to post the link, but it's by a company called Empatica. I stumbled upon this while looking for smother proof pillows and wanted to see if anyone in the community was familiar with it.
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